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IJE Advance Access originally published online on January 11, 2007
International Journal of Epidemiology 2007 36(1):139-146; doi:10.1093/ije/dyl254
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Published by Oxford University Press on behalf of the International Epidemiological Association © The Author 2007; all rights reserved.

Effects of a comprehensive health assessment programme for Australian adults with intellectual disability: a cluster randomized trial

Nicholas Lennox1,*,{dagger}, Christopher Bain2, Therese Rey-Conde1, David Purdie3,4, Robert Bush2 and Nirmala Pandeya3

1 Queensland Centre for Intellectual & Developmental Disability (QCIDD), School of Medicine, University of Queensland, Mater Hospitals, Raymond Terrace, South Brisbane 4101, Australia.
2 School of Population Health, University of Queensland, Herston Road, Herston, Queensland 4006, Australia.
3 Queensland Institute of Medical Research, Herston Road, Herston, Queensland, 4006, Australia.
4 Northern California Cancer Center, 32960 Alvarado-Niles Road, Suite 600, Union City, CA 94587, U.S.A.
{dagger} The Corresponding author has the right to grant on behalf of all authors and does grant on behalf of all authors, an exclusive licence (or non-exclusive for government employees) on a worldwide basis to the International Journal of Epidemiology to permit this article (if accepted) to be published in IJE editions, products and exploit all subsidiary rights.

* Corresponding author. Queensland Centre for Intellectual & Developmental Disability (QCIDD), Mater Hospitals, Community Services Building, Raymond Terrace, South Brisbane 4101, Australia. E-mail: n.lennox{at}uq.edu.au


   Abstract

Background People with intellectual disability constitute ~ 2% of the population. They die prematurely, and often have a number of unrecognized or poorly managed medical conditions as well as inadequate health promotion and disease prevention.

Methods A cluster randomized controlled trial with matched pairs was carried out. The participants were adults with intellectual disability (n = 453 in 34 clusters). The intervention was a health assessment programme to enhance interactions between the adult with intellectual disability, their carer and their general practitioner (GP). It prompted the systematic gathering of a health history and, subsequently, access to a GP for a guided health review and development of a health action plan. It also provided information about the health of adults with intellectual disability. Follow-up was for 1 year post intervention, with outcomes extracted from GPs’ clinical records.

Results Increased health promotion, disease prevention and case-finding activity was found in the intervention group. Compared with the control group there was a 6.6-fold increase in detection of vision impairment (95% confidence interval 1.9–40); a 30-fold increase in hearing testing (4.0–230); an increase in immunization updates [tetanus/diphtheria a 9-fold increase (4.2–19)], and improvements in women's health screening [Papanicolau smears were eight times more common (1.8–35)]. The intervention increased detection of new disease by 1.6 times (0.9–2.8).

Conclusions The Comprehensive Health Assessment Program (CHAP) produced a substantial increase in GPs’ attention to the health needs of adults with intellectual disability with concomitantly more disease detection. The presumption that these will yield longer-term health benefits, while suggestive, remains unexamined.


Keywords Intellectual disability, general practitioners, health assessment

Accepted 21 October 2006


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