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IJE Advance Access originally published online on July 4, 2007
International Journal of Epidemiology 2008 37(1):30-35; doi:10.1093/ije/dym136
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Published by Oxford University Press on behalf of the International Epidemiological Association © The Author 2007; all rights reserved.

Cohort Profile: The Western Australian Family Connections Genealogical Project

EJ Glasson1,2,*, NH de Klerk1, AJ Bass3, DL Rosman4, LJ Palmer2,5 and CDJ Holman2

1Telethon Institute for Child Health Research, Centre for Child Health Research, The University of Western Australia, Perth, Australia.
2School of Population Health, The University of Western Australia, Perth, Australia.
3Curtin University of Technology, Perth, Australia.
4Data Linkage Unit, Department of Health, Government of Western Australia, Australia.
5Laboratory for Genetic Epidemiology, Western Australian Institute for Medical Research, UWA Centre for Medical Research, The University of Western Australia, Perth, Australia.

*Corresponding author. School of Population Health, M431, The University of Western Australia, 35 Stirling Hwy, Crawley, WA 6009, Australia. E-mail: Emma.Glasson@health.wa.gov.au

Accepted 5 June 2007

The first 150 words of the full text of this article appear below.


   How did the study come about?
 
The Western Australian Family Connections Genealogical Project was proposed by Dr John Bass and implemented in 2003. The project aim is to create and store a system of links representing genealogical relationships for the residents of Western Australia (WA) to be used as a research tool in conjunction with health data to help investigate familial factors in health and disease. The project exists as a supplementary system of links to the WA Data Linkage System (WADLS) that regularly links records across several population-based data sets.1 When used in conjunction with this extensive collection of health-related data, the genealogical properties can enhance genetic and familial research projects to, for example, assess the degree of relatedness between individuals within study samples, assist in locating common ancestors and allow estimates of genetic risk.

WA has developed particularly strong capabilities in the linkage of population-based data over the past three decades. Since 1995 it . . . [Full Text of this Article]


   What does it cover?
 

   Who is in the sample, and what is attrition like?
 

   How often have they been followed up?
 

   What has been measured?
 

   What has it found? Key findings and publications
 

   What are the main strengths and weaknesses?
 

   Can I get hold of the data? Where can I find out more?
 

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